It is starting to hit me like a freight train, Carter will be leaving to go to college this time next year! To be honest it really started when Carter and I drove up to KU, University of Kansas, on May 2nd. Carter is looking at several colleges but he really does have a soft spot for KU now that we visited. It truly is beautiful up there and very hilly(which scares me with his CMT) shh don't tell him.:) BUT they have a great Med program, pharmacy program, full of traditions, cycling club (which we got to meet the president of) and they have a program that would help him if his CMT got real bad! Which really put my mind at ease.
Our KU admissions rep Jon did an outstanding job showing us around and really went the extra mile. He too was a pre-med student and actually knew about CMT!!!!! HUGE BONUS! He told us that they have a shuttle for students that break their leg or have a disability, were it will pick them up from their dorm and take them to their classes. Carter would give him/her his schedule and they would be there waiting for him and take him to his next destination! SUPER COOL! Plus they put in pathways all over campus that would allow him to get up the hill without using the stairs. Jon set it up so we did a campus tour, housing tour and he even drove us around campus and showed us downtown Lawrence. Overall, it was an amazing trip and we both fell in love with KU. I think I cried the whole time we were there! LOL I am such a baby when it comes to my baby.:)
Now we have 8 days left of the Junior year and we will be applying and visiting campuses all summer. Next stop is SFA (Stephen F Austin) which is here in Texas, no not in Austin, it is in Nacogdoches. It is about 4-4.5 hrs away so not too far from home. We will be visiting them the week of June 18th! We will let ya know how it goes! They too have a good pre-med program, cycling club and a really good physics and astronomy program. Carter wants to go to become a doctor, a general surgeon to be exact, so he is choosing physics as his major and astronomy as a possible minor. SFA has the second largest Observatory in Texas and the Central Time Zone! Pretty cool! Carter is really looking forward to the tour and he is very excited because his Nana will be taking him! Yep, my mom really wants to experience seeing her oldest grandson visit a college so she is flying in that week. Crazy cause she was just here on the week of May 7th, she came down before her visit to her oncologist in Louisiana. Anyway, we will see what he thinks of SFA.
Then we will be off to see the University of Arkansas. Which believe it or not is only 5-5.5 hours away. Not bad. They too have a great pre-med program, physics program and he knows people that go there and are looking to go there. So that would be nice. Plus they too have a cycling club and full of traditions too!
I know a lot of people think I am crazy for being so emotional and worrying but they don't have a child with a disease that has no cure and progresses. I know he will be fine cause that is just who he is. He doesn't give up, fights hard for what he wants and doesn't let his CMT get in the way. However, as a mom I worry about him being so far away from home and that his disease will progress. It has been pretty good but lately he is complaining more and more about his left leg. It is really tight and we have noticed that he is loosing muscle in his feet. Muscle atrophy in his feet and lower calf is progressing. Really hoping the stretches the physical therapist gave him and his leg braces will help. He is using the braces again and is able to wear them longer and longer as each day goes by. Praying they will help.
Of course do you think this is stopping him from planning his next triathlon? NO!!!! His swim coach is pushing him hard and he says it feels good in the pool, no pain. :) He wants to do one more tri this summer, we haven't found one yet that works into the schedule but I am sure he will find one.
We will keep you all posted on the college journey. Any advice from fellow CMTers?
Until Next Time..................Cherish the moments you have with you kids because time flies by so very fast and the next thing you know your sending them off to college! :(
Momma Hayes
"Stay Strong, Believe"~Carter Hayes
Showing posts with label cycling. Show all posts
Showing posts with label cycling. Show all posts
Tuesday, May 28, 2013
Thursday, May 16, 2013
Conquered the Caveman!
I remember my alarm sounding off at 4:00 am and thinking today is the day, the day to prove to myself that I can do anything. Rolled outta bed and I could start to feel the nerves kicking in. I start to get ready and then my mom tells me it is only going to be in the 40's this morning! Really? Really? Just figures. We load up the car, eat a small breakfast and head for the race. My dad and I get there first and its 5:30 and the parking lot is almost packed! The race doesn't start until 7. My mom and brothers soon follow.
It is cold and dark out. Cold enough to see your own breath. I get my bike and head over toward the transition center. There is already a line. While I wait to get in, they come by and do body markings. You get your number marked on your arm and on one calf it is your age and on the other your number. Now not only am I cold, the nerves charge through me. It is real, I am really doing my first tri! After setting my bike and race gear up in transition center I head over to pool area to get my timing chip and then line up for start. The race is sold out! Over 600 participants!
Around 6:45 they tell us to line up by number for the start of the race. I am number 63! Unfortunately, I had to wait outside in nothing but my tri shorts! It was so unbelievably cold, I was shivering and just wanted to get inside the pool. I could feel my muscles start to tighten. Finally, I am up next, I jump in the pool and start to swim. The swimming was a lot harder than I ever imagined. I kept thinking just don't stop, keep going it will be over soon. The water was so choppy in the pool due to so many people in at same time. I remember getting out of the pool and thinking to myself, THANK GOD that is over, now the easy part.
I run to transition station I can hear my family yelling GO CARTER! I hurry to put on my socks, bike shoes and helmet. As soon as I get on the bike I know I got this. The next two parts of the tri are the easy parts for me. I love to cycle and I run Cross Country for my high school, so I got this.
As I come up the last hill I hear my dad and little brother, Ayden yelling "GO CARTER, GO!" Then I come to the last stretch before the transition and I see my mom and brother, Zach. I hear them yell "GO CARTER! YOU ARE DOING AWESOME!" Thank God for my family pushing me. Throughout the race I could hear them yelling GO CARTER! They split up so my dad and little brother would be at one section to cheer me on and my mom and other brother at another to cheer me on, so I basically had support throughout the whole race. THANKS GUYS!
I hurry off the bike and change into my running shoes and start to run. As I start to run I realize I am almost done! After the first mile I am hot, tired and my legs and feet are killing me. All that keeps running through my head is don't give up, push through the pain, do not walk, whatever you do, do not walk! I look up and there is my mom and brother yelling "You only have 1/2 mile left! Keep it up!" Thank God is all I can think at that time. My legs felt like jelly and pains were shooting through my feet and legs. Then I come around the corner and I see the finish line and surge toward it.
I FINISHED MY FIRST TRIATHLON! I DID IT! I did not finish first, not even in top 100 but I finished! I came in 245th place and finished in 1 hour 25 minutes. Plus I was able to wear my Carter's Challenge Race jersey and raise awareness for my disease.
So remember, just because you have a disability does not mean you give up. You can do anything you set your mind to. The sky is the limit!
Until next time...............Don't give up, keep fighting the fight!
Carter
It is cold and dark out. Cold enough to see your own breath. I get my bike and head over toward the transition center. There is already a line. While I wait to get in, they come by and do body markings. You get your number marked on your arm and on one calf it is your age and on the other your number. Now not only am I cold, the nerves charge through me. It is real, I am really doing my first tri! After setting my bike and race gear up in transition center I head over to pool area to get my timing chip and then line up for start. The race is sold out! Over 600 participants!
Around 6:45 they tell us to line up by number for the start of the race. I am number 63! Unfortunately, I had to wait outside in nothing but my tri shorts! It was so unbelievably cold, I was shivering and just wanted to get inside the pool. I could feel my muscles start to tighten. Finally, I am up next, I jump in the pool and start to swim. The swimming was a lot harder than I ever imagined. I kept thinking just don't stop, keep going it will be over soon. The water was so choppy in the pool due to so many people in at same time. I remember getting out of the pool and thinking to myself, THANK GOD that is over, now the easy part.
I run to transition station I can hear my family yelling GO CARTER! I hurry to put on my socks, bike shoes and helmet. As soon as I get on the bike I know I got this. The next two parts of the tri are the easy parts for me. I love to cycle and I run Cross Country for my high school, so I got this.
As I come up the last hill I hear my dad and little brother, Ayden yelling "GO CARTER, GO!" Then I come to the last stretch before the transition and I see my mom and brother, Zach. I hear them yell "GO CARTER! YOU ARE DOING AWESOME!" Thank God for my family pushing me. Throughout the race I could hear them yelling GO CARTER! They split up so my dad and little brother would be at one section to cheer me on and my mom and other brother at another to cheer me on, so I basically had support throughout the whole race. THANKS GUYS!
I hurry off the bike and change into my running shoes and start to run. As I start to run I realize I am almost done! After the first mile I am hot, tired and my legs and feet are killing me. All that keeps running through my head is don't give up, push through the pain, do not walk, whatever you do, do not walk! I look up and there is my mom and brother yelling "You only have 1/2 mile left! Keep it up!" Thank God is all I can think at that time. My legs felt like jelly and pains were shooting through my feet and legs. Then I come around the corner and I see the finish line and surge toward it.
I FINISHED MY FIRST TRIATHLON! I DID IT! I did not finish first, not even in top 100 but I finished! I came in 245th place and finished in 1 hour 25 minutes. Plus I was able to wear my Carter's Challenge Race jersey and raise awareness for my disease.
So remember, just because you have a disability does not mean you give up. You can do anything you set your mind to. The sky is the limit!
Until next time...............Don't give up, keep fighting the fight!
Carter
Friday, August 19, 2011
Thank You Hincapie Sports!
We want to say thank you so much to Hincapie Sports for helping to get Carter's Challenge bike kits done on such short notice. They have been instrumental in making a child's dream come true. Not only a child's but a fathers as well. Thanks to Hincapie Sports, Carter's Challenge will have a team jersey and shorts with our very own logo! Plus, Carter will be able to wear them in his first race, The Cotton Patch Challenge.
Today we worked with our artist on the logo for Carter's Challenge and the design of the jersey and shorts. It was amazing to see Carter's vision come to fruition. Watching what he sketched on a piece of paper come to life on the screen, as a proof, was a moment I will never forget. When Emily, our artist, sent us the first proof I couldn't believe how she totally captured what we all had envisioned! It was so good in fact that we only had a couple of adjustments. Now we have one of the coolest logo's and I think the best team jersey out there! I cannot wait to unveil it to everyone! Hopefully, Monday we will get a proof that I will be able to upload onto the site. For now, I don't have a clue on how to do it!
I wish I had a way of showing it to you all right now. All I can tell you is I actually started crying when I saw the proofs today. Like I said before this is a dream come true for Carter and Sean. They both love road cycling, follow all the top cyclists, watch every race under he moon and have pictures of road bikes all over our house! So for them to have a team jersey made is beyond words.
Do you have a favorite race team?
O.k. it is late and I am completely exhausted. If I made mistakes or rambled to much I apologize now this is what happens when you are sleep deprived!
Until Next Time.................THANK YOU HINCAPIE SPORTS!
"Stay Strong, Believe"~Carter Hayes
Today we worked with our artist on the logo for Carter's Challenge and the design of the jersey and shorts. It was amazing to see Carter's vision come to fruition. Watching what he sketched on a piece of paper come to life on the screen, as a proof, was a moment I will never forget. When Emily, our artist, sent us the first proof I couldn't believe how she totally captured what we all had envisioned! It was so good in fact that we only had a couple of adjustments. Now we have one of the coolest logo's and I think the best team jersey out there! I cannot wait to unveil it to everyone! Hopefully, Monday we will get a proof that I will be able to upload onto the site. For now, I don't have a clue on how to do it!
I wish I had a way of showing it to you all right now. All I can tell you is I actually started crying when I saw the proofs today. Like I said before this is a dream come true for Carter and Sean. They both love road cycling, follow all the top cyclists, watch every race under he moon and have pictures of road bikes all over our house! So for them to have a team jersey made is beyond words.
Do you have a favorite race team?
O.k. it is late and I am completely exhausted. If I made mistakes or rambled to much I apologize now this is what happens when you are sleep deprived!
Until Next Time.................THANK YOU HINCAPIE SPORTS!
"Stay Strong, Believe"~Carter Hayes
Wednesday, August 10, 2011
Cotton Patch Challenge
Carter's Challenge presented a challenge to all of you the other day. We asked you to email or tell 5 people about this website. Did you tell or email 5 people? Let us know by leaving a comment or email us.
Carter's first road race will be taking place on September 17th and 18th. He will be racing in the Cotton Patch Challenge in Greenville, Tx. The race begins at 7:55 am and is 31 miles long! Carter is so ecstatic about racing in his first race, his birthday week and when his Nana is in town. We would also like to invite all our friends and family to come cheer Carter on in his first race.
Carter has been training pretty hard for this race. He tries to cycle for 1-2 hours a day right now. He is not training outside since it is 105-111 here in Texas! The heat is just too much and we don't want him to get dehydrated or heat exhaustion. We have an indoor trainer that allows Carter to ride his bike inside and he can watch t.v. while riding so that is a plus.
So far Carter has done very well with his training on the bike. He hasn't had too much pain just every now and then he will get it in his knees, but his feet aren't bothering him at all! He of course is fatigued when he is done, but that is expected since fatigue is a huge problem with CMT patients. Plus riding for 1-2 hours can wear you out. Overall, he feels good when he is on the bike.
Please feel free to leave some encouraging comments for Carter to help him get through his training for the race. To all our CMT friends we have a question for you. Have you done a cycling race before? If so tell us about it we would love to hear about your experience and any tips you may have.
Carter's first road race will be taking place on September 17th and 18th. He will be racing in the Cotton Patch Challenge in Greenville, Tx. The race begins at 7:55 am and is 31 miles long! Carter is so ecstatic about racing in his first race, his birthday week and when his Nana is in town. We would also like to invite all our friends and family to come cheer Carter on in his first race.
Carter has been training pretty hard for this race. He tries to cycle for 1-2 hours a day right now. He is not training outside since it is 105-111 here in Texas! The heat is just too much and we don't want him to get dehydrated or heat exhaustion. We have an indoor trainer that allows Carter to ride his bike inside and he can watch t.v. while riding so that is a plus.
So far Carter has done very well with his training on the bike. He hasn't had too much pain just every now and then he will get it in his knees, but his feet aren't bothering him at all! He of course is fatigued when he is done, but that is expected since fatigue is a huge problem with CMT patients. Plus riding for 1-2 hours can wear you out. Overall, he feels good when he is on the bike.
Please feel free to leave some encouraging comments for Carter to help him get through his training for the race. To all our CMT friends we have a question for you. Have you done a cycling race before? If so tell us about it we would love to hear about your experience and any tips you may have.
Until Next Time......................"Anything is possible. You can be told that you have a 90-percent chance or a 50-percent chance, but you have to believe, and you have to fight." ~Lance Armstrong
Friday, August 5, 2011
No Limits!
Sorry everyone its been a few days since I posted but it has been sooooo crazy. What's new right? The boys are all doing well and are soo excited to be getting requests for the bracelets. We have now sent out about 40 bracelets and have given out about 20. I have been asked several times what does the green bracelet mean? I of course say CMT(Charcot Marie Tooth) and Carter's Challenge. I will say this has been such a great idea, I love being able to spread the word just by a bracelet.
This week Carter has been busy with Drivers Ed! Thanks Pa! He received a 90 on his first test and then he passed his other test, they didn't give us a score, but he now gets his permit!!!!! Woooo Hoooo! He is excited but nervous and I don't blame him. I remember I was sooo nervous when my dad took me out. I had to learn on a stick. I told Carter how my dad took me to a parking lot and made me start and stop on this huge hill in the Business Park. It was sooo nerve wrecking but after many hours of practice I never had problems with a clutch on a hill in S.F. What is cool about his Drivers Ed class is they get to use simulators. Carter says it is so fun, I guess he gets to drive at 90 mph on the game....just not in real life please....
Carter's 2nd appointment with his Physical Therapist went well. She said she now knows his limits and what works for him and what doesn't. She said it will be a work in progress. Carter does stretches for his toes against a wall, he works with bands to help his hamstrings and calves and does lots of other things to help his Achilles heal and ankle. It was funny cause I couldn't see him at one point, I had Ayden so we were up in the waiting area, but I heard Alise say to him "Carter I can see you, you are cheating!" She then told her assistant to help him since he's a cheater! LOL. I guess when he does some of his stretches with the bands, his feet tend to go outward and he needs to keep them neutral. He also got his first taste of electrical stimulation, which is were they stick electrodes on your skin to contract certain muscles. This helps strengthen the muscles and brings blood to the those muscles to help them heal faster. I guess when he was getting this done she kept asking Carter "Can you feel it or are you numb?" Apparently, he said he was numb so she had to keep raising the level up! He said after raising it several times she was finally able to get the muscle to contract. Carter said it was really funny because she kept looking at him like are you o.k. and he would laugh and smile at her.
So she told us that he needs to do his exercises everyday no matter what, even if he is at a friends house. Which is exactly what happened yesterday and today. I guess he is keeping his word and following through with it.
Yesterday, Carter and Carson left our house and said they were going on a walk. Well that was at 7pm, I get a call at 9:45 from Carter, Tyler and Carson telling me "Ma! We are at Chicken Express! My phone is dead so I thought I should call you so you don't freak out." I said "Too late." At least they called....then I get a call at 11:45 saying we are at Tylers house and I am spending the night. Come to find out that they had walked from Chicken Express back to Tylers house and around Castle Park, it is a pretty good distance from our house. Carter said his knees hurt and his feet hurt but he kept on going. It took about 45 minutes for the pain to go away but at least it did. I told him today, no walking or running!
As for Zachy, he has had a great week. He has been staying cool in the pool! I am soooo glad that he loves swimming since it is one of the best things for his CMT. We also went to Scottish Rite on Tuesday to get the results of his learning tests. We arrived at 9:25 and didn't get out of there until after 2! It was a great meeting but of course more work for me. I met with the head Dr. and another Dr. for 3 hours and went over all the results. Bottom line, Zach has ADHD. She said he is "consistantly, inconsistant" with his work. He is very smart but his ADHD is getting in the way. She told me I will have to work a lot with Zach on getting him into different routines and I will need to get the school to make some adjustments to his IEP plan. She really wants him to be able to use a keyboard in school since his handwriting is so bad due to the ADHD and his CMT. I also have to get 3 different books on raising a child with ADHD and one book for Zach on what it is like to have ADHD. She told me to read up on it and get him in to see his Dr. so we can get him on a medication that will work best for him. Long story short, I need to make chore charts, house rules, daily charts...charts, charts and more charts. All so he can be visually reminded. She said I might have to repeat myself a couple of times. Oh and I have to have lots of patience too. Um, Houston we might have a problem....I don't have a lot of patience. I guess I will have to try harder...
On Wednesday Zach went to the Urologist and that was a interesting visit. It was at Children's Hospital in Plano and we were the first patient of the day! Love it! We did not have to wait and the visit was all about him. She first started with an ultrasound of his bladder full, then they had Zach empty his bladder and did another one. Good news is his bladder did empty almost completely. Then we went on to some not so fun stuff. A series of questions that no one likes to talk about....yep you guessed it, poop. She pulled out the handy dandy "stool chart" which is basically like a police lineup where you pick the bad guy. Anyway, after discussing this they took another ultrasound to see if his bladder was filling up like it should and if there was anything else going on. His bladder wall looks great and so does his bladder, the only thing is his colon is pushing on his bladder and this could be the issue. What do we do about it? We make sure to go to the restroom every 3 hours, drink only 2 cups of milk a day, lots of water, lots of fiber and more. I found out that Zach has been told he cannot use the restroom during the day at school because they are in the middle of a lesson plan or something. The teachers ask him "Is it a dire emergency?" The doctor flipped out and said "Yes, for you it is a dire emergency." She wrote a letter to the school telling them if he needs to use the restroom they must let him every 2 hours for medical purposes. I check back in with her in two weeks to see if there is any improvement with him and then take it from there.
Overall, pretty good week, just super busy. I am a little overwhelmed at this point now that I have to research ADHD too. But we do what we have to do to take care of our kids. I have been super busy designing the logo for Carters Challenge and think I am done. We will be trying to find someone to help us with it and load it onto the web. If you know anyone that could do it for free please let me know. We are trying to get all this done asap since big things are going to be coming in September! There will be more on this next time. Be prepared to help with CMT awareness. Each and everyone of you will be asked to help.
Until Next Time...........................Charcot Marie Tooth Disease-Funny Name, Serious Disease!
This week Carter has been busy with Drivers Ed! Thanks Pa! He received a 90 on his first test and then he passed his other test, they didn't give us a score, but he now gets his permit!!!!! Woooo Hoooo! He is excited but nervous and I don't blame him. I remember I was sooo nervous when my dad took me out. I had to learn on a stick. I told Carter how my dad took me to a parking lot and made me start and stop on this huge hill in the Business Park. It was sooo nerve wrecking but after many hours of practice I never had problems with a clutch on a hill in S.F. What is cool about his Drivers Ed class is they get to use simulators. Carter says it is so fun, I guess he gets to drive at 90 mph on the game....just not in real life please....
Carter's 2nd appointment with his Physical Therapist went well. She said she now knows his limits and what works for him and what doesn't. She said it will be a work in progress. Carter does stretches for his toes against a wall, he works with bands to help his hamstrings and calves and does lots of other things to help his Achilles heal and ankle. It was funny cause I couldn't see him at one point, I had Ayden so we were up in the waiting area, but I heard Alise say to him "Carter I can see you, you are cheating!" She then told her assistant to help him since he's a cheater! LOL. I guess when he does some of his stretches with the bands, his feet tend to go outward and he needs to keep them neutral. He also got his first taste of electrical stimulation, which is were they stick electrodes on your skin to contract certain muscles. This helps strengthen the muscles and brings blood to the those muscles to help them heal faster. I guess when he was getting this done she kept asking Carter "Can you feel it or are you numb?" Apparently, he said he was numb so she had to keep raising the level up! He said after raising it several times she was finally able to get the muscle to contract. Carter said it was really funny because she kept looking at him like are you o.k. and he would laugh and smile at her.
So she told us that he needs to do his exercises everyday no matter what, even if he is at a friends house. Which is exactly what happened yesterday and today. I guess he is keeping his word and following through with it.
Yesterday, Carter and Carson left our house and said they were going on a walk. Well that was at 7pm, I get a call at 9:45 from Carter, Tyler and Carson telling me "Ma! We are at Chicken Express! My phone is dead so I thought I should call you so you don't freak out." I said "Too late." At least they called....then I get a call at 11:45 saying we are at Tylers house and I am spending the night. Come to find out that they had walked from Chicken Express back to Tylers house and around Castle Park, it is a pretty good distance from our house. Carter said his knees hurt and his feet hurt but he kept on going. It took about 45 minutes for the pain to go away but at least it did. I told him today, no walking or running!
As for Zachy, he has had a great week. He has been staying cool in the pool! I am soooo glad that he loves swimming since it is one of the best things for his CMT. We also went to Scottish Rite on Tuesday to get the results of his learning tests. We arrived at 9:25 and didn't get out of there until after 2! It was a great meeting but of course more work for me. I met with the head Dr. and another Dr. for 3 hours and went over all the results. Bottom line, Zach has ADHD. She said he is "consistantly, inconsistant" with his work. He is very smart but his ADHD is getting in the way. She told me I will have to work a lot with Zach on getting him into different routines and I will need to get the school to make some adjustments to his IEP plan. She really wants him to be able to use a keyboard in school since his handwriting is so bad due to the ADHD and his CMT. I also have to get 3 different books on raising a child with ADHD and one book for Zach on what it is like to have ADHD. She told me to read up on it and get him in to see his Dr. so we can get him on a medication that will work best for him. Long story short, I need to make chore charts, house rules, daily charts...charts, charts and more charts. All so he can be visually reminded. She said I might have to repeat myself a couple of times. Oh and I have to have lots of patience too. Um, Houston we might have a problem....I don't have a lot of patience. I guess I will have to try harder...
On Wednesday Zach went to the Urologist and that was a interesting visit. It was at Children's Hospital in Plano and we were the first patient of the day! Love it! We did not have to wait and the visit was all about him. She first started with an ultrasound of his bladder full, then they had Zach empty his bladder and did another one. Good news is his bladder did empty almost completely. Then we went on to some not so fun stuff. A series of questions that no one likes to talk about....yep you guessed it, poop. She pulled out the handy dandy "stool chart" which is basically like a police lineup where you pick the bad guy. Anyway, after discussing this they took another ultrasound to see if his bladder was filling up like it should and if there was anything else going on. His bladder wall looks great and so does his bladder, the only thing is his colon is pushing on his bladder and this could be the issue. What do we do about it? We make sure to go to the restroom every 3 hours, drink only 2 cups of milk a day, lots of water, lots of fiber and more. I found out that Zach has been told he cannot use the restroom during the day at school because they are in the middle of a lesson plan or something. The teachers ask him "Is it a dire emergency?" The doctor flipped out and said "Yes, for you it is a dire emergency." She wrote a letter to the school telling them if he needs to use the restroom they must let him every 2 hours for medical purposes. I check back in with her in two weeks to see if there is any improvement with him and then take it from there.
Overall, pretty good week, just super busy. I am a little overwhelmed at this point now that I have to research ADHD too. But we do what we have to do to take care of our kids. I have been super busy designing the logo for Carters Challenge and think I am done. We will be trying to find someone to help us with it and load it onto the web. If you know anyone that could do it for free please let me know. We are trying to get all this done asap since big things are going to be coming in September! There will be more on this next time. Be prepared to help with CMT awareness. Each and everyone of you will be asked to help.
Until Next Time...........................Charcot Marie Tooth Disease-Funny Name, Serious Disease!
Friday, July 29, 2011
Cycling and the Tour De France
The last 3 weeks have been completely consumed by the Tour De France in our house. I will say even though I am not an avid cyclist I enjoyed the distraction from time to time. Every year from July 2nd to July 26th or so the race is on our tv's. This year was extra special considering Carter was just diagnosed with CMT. This is a great sport for him not only because he loves to cycle but it is a low impact sport which is perfect for people with CMT. People with CMT still need to stay active so there muscles don't waste away and they need to do a low impact sport so they don't aggravate the disease. Carter has been getting on his indoor trainer and riding for 1 1/2 to 2 hours while he watches the tour. He LOVES it and is doing great. He wears his heart rate monitor so he can keep an eye on that, he doesn't have to be out in our lovely 100 degree weather and he gets mom as a cheerleader (not so sure he likes that). It's great to see him so passionate about something again. Plus it is awesome to see him and his dad take off early in the morning with their bike gear, waters and the great bond between them. I will be posting pics of them cycling soon. They just went on a 20 mile ride on Wednesday and they took Ayden in the bike carrier! Ayden loves it. Anyway, just wanted to post something positive to let you all know that despite the disease, he is not letting it get the best of him. He is still able to do the things he loves.
Until Next Time......KEEP CYCLING!
Until Next Time......KEEP CYCLING!
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