Showing posts with label HNF. Show all posts
Showing posts with label HNF. Show all posts

Thursday, September 8, 2011

Charcot Marie Tooth Awareness Month- Take The Challenge

WOW!!!! So far September has kicked off to a great start.  Between the article in the Cross Timbers Gazette, the article on National CMT Resource Center, posting posters in local doctors offices and getting ready for the Cotton Patch Challenge my head is spinning!


We also have decided to have a booth at the Marcus 2 Cross Country Invitational on September 24th.  We will be passing out information on CMT, selling Carter's Challenge bracelets, giving out CMTA bracelets n t-shirts, all to raise awareness for Charcot Marie Tooth Disease and the CMTA. 

I also will be working with local businesses to raise awareness for CMT.  Some of them are willing to help not only raise awareness but raise funds as well for research and one day a cure! 

I WANT YOU ALL TO KNOW IF I, A STAY AT HOME MOM OF 4, CAN RAISE A BIT OF AWARENESS THEN U CAN TO! 

I CHALLENGE EACH AND EVERYONE OF YOU TO DO ONE NEW EVENT, FACEBOOK POST, EMAIL, LETTER, NEWSPAPER AD, RADIO....SOMETHING BY MONDAY SEPTEMBER 30TH.

EACH INDIVIDUALS EFFORTS NO MATTER HOW SMALL CAN BRING US ONE STEP CLOSER TO A CURE!

SO PLEASE TAKE ON CARTERS CHALLENGE AND MAKE A DIFFERENCE TODAY.   STAY STRONG, BELIEVE!

UNTIL NEXT TIME..........U CAN MAKE A DIFFERENCE!

Wednesday, August 31, 2011

Charcot Marie Tooth Awareness Month Is Here!



Tomorrow is September 1st and the start of CHARCOT MARIE TOOTH AWARENESS MONTH!!!!!
I know a lot of us have been so busy getting ready to raise awareness. I wanted to say some shout outs to some very special people who I think do an outstanding job raising awareness for Charcot Marie Tooth Disease. 
  • Kaitlyn and Lori Mattheis with Mission Happy Feet.  This mother, daughter duo do such a great job getting the word out by making bracelets with feet on them, blogging, holding events, making videos and more! Way to go guys!
  • Elizabeth Ouellette with Charcot Marie Tooth AssociationI don't even know where to begin...She does it all! Videos, school events, public speaking, fundraising, and the list goes on.  She volunteers for the CMTA and gives it everything she's got! Kudos Elizabeth!
  • Melinda Lang with Living Well With CMTMelinda has done some amazing things for CMT. Not only does she blog about it and hold fundraisers but she also received a CMT Awareness Month  proclamation from the State Of New York and the City Of Albany!!!! Way to raise Awareness!
  • Carol Liu with National CMT Resource CenterWow this is all I can say about Carol.  She like Elizabeth seems to do it all.  Blog, tweet, editor in cheif for HNF, attorney, mom, oh and yeah wrote Arlene On the Scene.  Like I said WOW! 
I could go on and on about people from all over raising awareness and funds for CMT.  People posting on Facebook, tweeting, blogging and fundraising.  We all are stepping up to plate to help everyone who is affected by Charcot Marie Tooth.  I APPLAUD EACH AND EVERY ONE OF YOU! 

I have made some great friendships so far in this journey, friends from all over the world!  The CMT community is AMAZING!  To my new friends Carly Andrews, Melissa Wilson Arakaki, Melissa Lykins you all have been a great support and have done wonderful things for CMT.  Keep up the outstanding work!

Until Next Time.............."STAY STRONG, BELIEVE"