Today Carter went in for his checkup with his regular Pediatrician, Dr. Debra Naylor with 18 and Under MD. The good news is he gained some of his weight back! Yeah! Still not where we are supposed to be but I'll take it. Dr. Naylor did her checkup and said he seems to be doing well. She just wanted to take blood again to check his white blood count, liver and other markers to make sure that everything is back down to normal. Crossing my fingers right now......
When we were in with Dr. Naylor she asked Carter about Carter's Challenge. She heard about it from one of the other doctors in the office, Kim Bookout. Who had learned about from me on Ayden's last checkup. She told us that she would love to support us by letting us put up brochures or flyer's about Charcot Marie Tooth in the waiting rooms. She also suggested that we put our bracelets out there too! Oh and she bought one from us! I actually didn't have any on me so she took mine! Then before we left she grabbed Paul, the doctor who caught the CMT, and he bought Carter's bracelet! They took the bracelets right off of us! What awesome support!
Having a disease and having children with a disease is difficult, time consuming and hard work. The one thing I can tell all of you, is having great pediatricians makes all the difference. Dr. Debra Naylor, Kim Bookout and Paul Boerger have been so incredibly supportive, helpful and caring during our journey. A doctor can have knowledge on the disease, but a real healer not only has knowledge but compassion. I feel truly blessed to have such wonderful doctors taking care of our children.
I hope that all of you have wonderful doctors like us. To learn more about 18 and Under Md check them out at www.18andundermd.com. You just may see Carter on there one day.....Another way they are thinking of supporting us!
Until Next Time.............Having the right doctor can make a world of difference!
"Stay Strong, Believe"~Carter Hayes
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