Let me first start off with some quick updates and then I will tell you about UT Southwestern! My mom was not able to make it down the week of June 17th. So we ended up not going to Arkansas but to Stephen F Austin since it is a lot closer. We had an amazing private tour of the Observatory! We were able to see the moon, Saturn, Venus and stars! The boys loved it and boy did they feel special. Last Friday we went on a tour of the campus and it is beautiful. Lots of trees! But, Carter has decided it is not a place for him. It is just not a good fit with the area, size and pre-med.
So now we are off to University of Arkansas on July 10th and 11th. My mom is coming down to tag along with us. She is super excited to go on a college visit with her oldest grandson. We have decided to Zach along with us, so it will be my mom, Carter, Zach and of course little ole me. Ayden is staying back with daddy and Ms. Holly(his pre-k teacher). We will let you all know how it goes at Arkansas. They have us scheduled for a full day tour and Carter gets to meet with the Pre-Med Department! Yeah!
Now for the great news! As many of you know we have struggled with finding a Dr. who knows and treats CMT. We did try Scottish Rite but the Dr. was not a good fit. So after lots of research and help from my CMT Facebook friends we found one! Yes, I said Facebook, who would have ever thought how connecting with fellow CMTers on Facebook would be such an incredible resource. Several CMT patients recommended looking into UT Southwestern's Neurology Department, specifically Dr. Sharon Nations and Dr. Jaya Trevedi. After much research, lots of paperwork and help from no other than Kim Bookout ( I owe her my next born child or something like that), I received a call saying they will take Carter's case! THANK THE LORD!
Our appointment is scheduled for August 6th and Carter will have another EMG that day to compare to his last one in 2011. I know he is not looking forward to that but I am anxious to see how much it has progressed. I am so thankful he was able to get in before school. He has been having a lot of pain lately and his Achilles heal is really bothering him too. I hate to see him in pain....He doesn't complain about it but I can tell when he is in pain. He is so strong and such a fighter! Wish I was more like him. LOL Anyway, anxious to see what her approach to CMT is. We would really like to have surgery, the braces just are not helping. We will see what she has to say and we will definitely keep you all informed.
Well gotta run! Carter has Bible class tonight and he has a flat tire! :( So I am dropping them off!
Until next time..................Shoot for the stars!
Momma Hayes
"Stay Strong, Believe" ~ Carter Hayes
