Detroit Here We Come!

So today on my to-do list was to call Lisa at Dr. Shy's office at Wayne State University in Detroit, Michigan.  See Dr. Shy is a Professor of Neurology and Molecular Medicine and Genetics and is known around the world as the best CMT doctor.  People travel from all over the world to be evaluated at his one of a kind CMT clinic.   

The CMT clinic is set up as a multidisciplinary team, consisting of a neurologist, electrophysiologist, genetic counselor and physiatry specialists.  They assess each patient clinically but also collect data for research to help develop new ways to treat CMT and ultimately find a cure.  

Wayne State CMT Clinic is the lead clinic in research and is currently one of three sites doing a clinical trial for CMT 1A on High Dose Ascorbic Acid.  They have received numerous grants from the National Institutes of Health, Charcot Marie Tooth Association and the MDA just to name a few.  This allows them to provide free clinics to families with CMT. YEP FREE!  They bill your insurance and then you don't have to pay the rest! 

Thanks to Jeanna Sweeney giving me the number to contact I was able to talk with Lisa, who assist Dr. Shy at the CMT clinic today and she said they would love to see they boys!  I almost started bawling on the phone with her but I didn't want to miss any information she was giving me.  So on DECEMBER 15TH 2011 WE WILL BE GOING TO DETROIT MICHIGAN!  COME H*** OR HIGH WATER!  This was what she had open and I said absolutely without even thinking twice about it. 

I am soooo excited and soooo thankful that Carter and Zach will have the opportunity to be seen by the best of the best Doctors on CMT.  God is truly blessing us right now. 

So now I have to find out how me and the boys are going to get there but I know it will happen somehow, someway. 

Until Next Time.................DETROIT HERE WE COME!