The last 2 days have had there ups and there downs. I can tell you one thing I have learned through this is that, Carter is someone that I aspire to be like. I wish I had just a smidgen of the positivity he has. Through all of this he has stayed positive and has a great sense of humor about the whole thing. There was a quote on one of my blogs that I just fell in love with the other day and wanted to put it on here. I love it and believe it whole heartily.
"Motherhood is about raising and celebrating the child you have, not the child you thought you would have. It's about understanding that he is exactly the person he is supposed to be. And that, if you're lucky, he just might be the teacher that turns you into the person you are supposed to be." --Joan Ryan
OK. enough of the sappy stuff....Bottom line right now is Dr. Naylor said we are in a waiting game as far as Lymphoma or anything to do with the lymph nodes. The reason being is his latest blood test from Tuesday came back pretty normal. The immature white cells matured an went away. All other lab work as well came back pretty good and he gained some weight! He is at 117! The nurses and I were laughing because who would have ever thought you'd be so happy to see someone gain weight? Dr. Naylor and the oncologist looked at his Chest CT Scan and found one lymph node on his left side in his chest wall that is "inflamed" but not to much to be concerned with. Especially since they cannot feel the other node any longer. They do want to keep an eye on his nodes, cough, fatigue and weight. Because the steroids the ER gave him could have put him into "remission" if he has lymphoma. So basically, we will go back in 5 weeks and redo full cbc and some other markers to see if anything spikes again. If he starts to loose weight again rapidly, more nose bleeds, fever, cough gets worse, call in immediately. As she told Carter "When you come back in I don't want to see any large nodes, no fever, no cough and you better get fatter!" LOL.
Today July 15th we went in for the EMG test (nerve testing). I will say so far this has been the most difficult thing for me as a parent. Watching you child get shocked and needles put into him is not fun. There was a point when he had a needle in his right knee and shocked Carter 3 times in a row that I could see his leg move and Carter looked up at me and said "That one hurt". I would not wish this on anyone ever! He was such a trooper and the Dr. told him he is going to win patient of the year award! He couldn't believe how well he did. I will say the Dr. was very kind and told us about everything before he did it. He warned Carter as to when the shock would happen and made sure he was o.k. He believes that to get a diagnosis you don't have to "torture your patients". After the first couple of shocks Carter said to us " I feel like Electro Man!" We laughed and then a little later on the Dr. asked how are you doing? Carter said " Good. I am having a shocking experience today!" Dr. Flores said "Your stealing all my good lines." Carter laughed and said " This is such an electrifying day!" So despite being electrocuted and having needles put in him, he still found his sense of humor and made lemon aide out of lemons. This is why he INSPIRES ME!
Until Next time...........Believe........
"Motherhood is about raising and celebrating the child you have, not the child you thought you would have. It's about understanding that he is exactly the person he is supposed to be. And that, if you're lucky, he just might be the teacher that turns you into the person you are supposed to be." --Joan Ryan
OK. enough of the sappy stuff....Bottom line right now is Dr. Naylor said we are in a waiting game as far as Lymphoma or anything to do with the lymph nodes. The reason being is his latest blood test from Tuesday came back pretty normal. The immature white cells matured an went away. All other lab work as well came back pretty good and he gained some weight! He is at 117! The nurses and I were laughing because who would have ever thought you'd be so happy to see someone gain weight? Dr. Naylor and the oncologist looked at his Chest CT Scan and found one lymph node on his left side in his chest wall that is "inflamed" but not to much to be concerned with. Especially since they cannot feel the other node any longer. They do want to keep an eye on his nodes, cough, fatigue and weight. Because the steroids the ER gave him could have put him into "remission" if he has lymphoma. So basically, we will go back in 5 weeks and redo full cbc and some other markers to see if anything spikes again. If he starts to loose weight again rapidly, more nose bleeds, fever, cough gets worse, call in immediately. As she told Carter "When you come back in I don't want to see any large nodes, no fever, no cough and you better get fatter!" LOL.
Today July 15th we went in for the EMG test (nerve testing). I will say so far this has been the most difficult thing for me as a parent. Watching you child get shocked and needles put into him is not fun. There was a point when he had a needle in his right knee and shocked Carter 3 times in a row that I could see his leg move and Carter looked up at me and said "That one hurt". I would not wish this on anyone ever! He was such a trooper and the Dr. told him he is going to win patient of the year award! He couldn't believe how well he did. I will say the Dr. was very kind and told us about everything before he did it. He warned Carter as to when the shock would happen and made sure he was o.k. He believes that to get a diagnosis you don't have to "torture your patients". After the first couple of shocks Carter said to us " I feel like Electro Man!" We laughed and then a little later on the Dr. asked how are you doing? Carter said " Good. I am having a shocking experience today!" Dr. Flores said "Your stealing all my good lines." Carter laughed and said " This is such an electrifying day!" So despite being electrocuted and having needles put in him, he still found his sense of humor and made lemon aide out of lemons. This is why he INSPIRES ME!
Until Next time...........Believe........
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